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While passion is often the fuel that inspires us to action, the CCCC/CCPA’s core leadership is comprised of established professionals with the knowledge and experience to make change possible.

Representing organizations and stakeholders with long-recognized excellence in both community outreach and the legislative success, they hold professional titles as Senior/Executive Directors, CEO’s and Legislative Analysts/Consultants within key organization members on the forefront of patient care.

The purpose-driven strength of the CCPA lies with its collective experience and insight, thus our Advisory Committee reflects our inclusive and expanding multi-state partnerships and coalition members.

Advisory Committee

The Advisory Committee is comprised of around twenty individuals representing national and state patient advocate organizations, chronic care patients and caregivers. Based on their collective experience and insight, the Advisory Committee makes recommendations to the Steering Committee regarding policy directions CCPA should pursue.

Rolf Benirschke

Legacy Health Strategies


Ben Chandhok

Arthritis Foundation


Allen Fremont, MD, PhD

Physician Policy Researcher

Associate Professor

4th Stage Cancer Survivor


Elizabeth Helms

California Chronic Care Coalition

Chronic Care Policy Alliance

California & Multi-State

Tom McCoy

American Cancer Society Cancer Action Network (ACSCAN)


Sharon O’Hara

Colorado Chronic Care Collaborative


Bill Remak

California Hepatitis C Task Force


Joan Werblun, RN

California Chronic Care Coalition