Maintain robust benefit design and patient protections in any repeal/replacement of the Affordable Care Act, particularly for children and the underserved population.
Support competition and incentives for the development of innovative cures and treatments, and precision medicine.
Support appropriate reform of the U.S Veterans Affairs Health Administration and support our nation’s veterans.
Support the improvement and maintenance of a strong clinical trials process in the U.S. That process should include:
Patient engagement on clinical trials at the earliest phase, and in the design of the trial
Patient awareness. Clinical trials should be listed and advertised in such manner that patients are informed and aware of them and the benefit
Accessibility. Clinical trials should be made reasonably accessible to all patients, regardless of socio-economic status
Availability of data. Researchers should have reasonable access to data obtained from clinical trials. As long as no violation of HIPPA occurs, and the patient provides consent, non-identifiable data from clinical trials should be readily available to researchers
Appropriate patient-centric Medicare reforms. Efforts to modernize the 340B program and curb abuses so it can continue to serve uninsured and indigent populations
Support reasonable reforms of our nation’s health care system that have bi-partisan support and that incorporate the input and advice of patient advocate organizations in America.