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CCPA Toolkit for COVID-19 and the Chronic Disease Community

As an organization representing health consumers with chronic conditions across the country, the Chronic Care Policy Alliance understands the concern many have as it relates to the novel Coronavirus-19 (COVID-19). We will continue to keep you updated on the latest information and how the COVID-19 pandemic could affect you or your loved ones with chronic conditions. We will be posting any updates we publish here:

FDA Approves First COVID-19 Vaccine – News Release – August 23, 2021 

Updated Quarantine and Isolation Recommendations – Guidelines – August 19, 2021

Launch of YourVaccinationGuide.org – Press Release – June 2, 2021

Disabled Resources Center Partners to Servc – Resources – May 11, 2021

I’m Vaccinated. Now What? – Blog Post – March 14th, 2021

COVID-19: The Most Lethal Pandemic in 102 Years – Presentation – December 16th, 2020

COVID-19 Vaccine Education and Equity Project – Website – December 3rd, 2020

Thanksgiving Tips for a Healthy Holiday – Blog Post – November 20th, 2020 

Patient Access to Medications Threatened by Federal “Copay Accumulator” Rules – Factsheet – November 19th, 2020

New Normal, Same Cancer – Addressing Decline in Cancer Screenings and Preventive Care Toolkit – November 13th, 2020

NYT Coronavirus Vaccine Tracker – Article – October 5th, 2020

California Immunization Coalition and California Chronic Care Coalition Urge People to Get Vaccinated During Seasonal Influenza and COVID-19 “Twindemic” – CCCC Press Release – August 31st, 2020

What to Know About Contact Tracing – Blog Post – August 26th, 2020

To Optimize Medication Use, Listen to the Patient’s Perspective – Blog Post – August 5th, 2020

California Governor Orders All Indoor Operations to Close as Cases Spike – Press Conference Summary – July 14th, 2020

Maintaining Preventative Care During the Pandemic – Blog Post – June 26th, 2020

Reduced Cost of Insulin is Positive Step to Increased Patient Affordability – OpEd – June 12th, 2020

The State of Chronic Care: How a New Federal Rule Will Increase Prescription Drug Costs for Patients – Webinar – May 27th, 2020

Statement on CMS Lowering Insulin Costs for Seniors – Press Statement – May 26th, 2020

COVID-19 Weekly Recap – Summary – May 8th, 2020

Watch – California Advocacy to Action Combined Chronic Disease Advocacy Day – Webinar – May 6th, 2020

Watch – COVID-19 and the Chronic Disease Community – Webinar – April 29th, 2020

Register – COVID-19 and the Chronic Disease Community – Webinar – April 23rd, 2020

Health Groups Urge Californians to Respond to Gov. Newsom’s Request to Check In On Seniors – Press Release – April 15th, 2020

How Chronic Disease Patients Are Innovating Together Online – Blog Post – April 14, 2020

Medicare Beneficiaries Who Get Coronavirus May Face a Price Shock – Blog Post – April 10th, 2020

COVID-19 Task Force Updates Opportunities for Small Businesses, Guidelines, and PPE – Blog Post – April 3rd, 2020

COVID-19 Recap for Week of March 23-27 – Summary – April 1st, 2020

President Trump Emphasizes Need for America to Reopen While Combatting COVID-19 Pandemic – Press Conference Key Points – March 24th, 2020 

Statement on COVID-19 For People with Chronic Conditions – Organization Statement – March 15th, 2020

White House Declares National Emergency – Press Conference Key Points – March 13th, 2020  

Cases in the U.S. – CDC

 

 

Toolkits And Useful Information

HHS & ASPR emPOWER Dashboard

Coronavirus.gov Federal Resource Page

CDC Recommendations for Higher Risk Populations

CDC COVID-19 Cases Updated Daily

Centers for Medicare and Medicaid Services COVID-19 Partner ToolKit

President’s 15 Day Guidelines to Slow the Spread

World Health Organization Live Situation Dashboard

My Patient Rights for Health Plan Denials

My Patient Rights COVID-19 State Public Health Information

COVID-19 Active Legislation Across the Country Interactive Map

COVID-19 Enacted Laws Across the Country Interactive Map 

FEMA Coronavirus Rumor Control – Myths

211.org to be Connected to Local Services and Help – Call 211

Substance Abuse and Mental Health Services Administration’s (SAMHSA’s) Disaster Distress Helpline: 1-800-985-5990

COVID-19 Active Legislation Across the Country Interactive Map

COVID-19 Enacted Laws Across the Country Interactive Map 

Resources for Families with Complex Medical Needs

Follow Along On Social Media

Twitter Pages

Chronic Care Policy Alliance Twitter – @ChronicCarePA

My Patient Rights Twitter – @MyHealthRights

California Chronic Care Coalition Twitter – @CAChronicCare

Centers for Disease Control and Prevention Twitter – @CDCgov

World Health Organization Twitter – @WHO

White House Twitter – @WhiteHouse

Centers for Medicare and Medicaid Twitter – @CMSgov

Facebook Pages

Chronic Care Policy Alliance Facebook – @ChronicCarePA

My Patient Rights – @MyPatientRights

California Chronic Care Coalition Facebook – @CAChronicCare

Centers for Disease Control and Prevention – @CDC

World Health Organization – @WHO

Helpful Links

MyPatientRights.org

ChronicCareAlliance.org

CaliforniaChronicCare.org

CDC.gov

WHO.int