June 10, 2021
Don’t let lawmakers take away our medicine
By Barbara Kavanagh Glendale Star My husband has lived with multiple myeloma, a rare blood cancer, for three decades. As his caregiver, I know how vital it is to have access to the latest medicine. That's why I'm concerned about…
Read MoreJune 8, 2021
Nevada Prioritizes Access To Healthcare
By Tom McCoy Senior Spectrum Working in tandem, state officials and the biopharmaceutical industry have succeeded in making COVID vaccines accessible and plentiful throughout Nevada helping with our economy’s recovery. But bypassing just one federal healthcare bill, that all could…
Read MoreJune 7, 2021
CCPA Opposes Biden Administration Decision on Copay Assistance that Would Have Helped Patients
In late April the Biden administration released the rules that govern how private health plans will operate in 2022. CCPA was disappointed to see the administration fail to address the issue of copay assistance for prescription drugs, and in doing…
Read MoreJune 2, 2021
New Website Answers Vaccination Questions and Provides Essential Information for People at High Risk for COVID-19
New Website Answers Vaccination Questions and Provides Essential Information for People at High Risk for COVID-19…
Read MoreApril 23, 2021
Congress Should Ask: Does Health Care Policy Put Patients First?
By Liz Helms Inside Sources As the U.S. faces many urgent and emergent challenges, including COVID-19 and the economic downturn the virus has caused, Congress clearly has a lot on its plate. In this chaotic climate, lawmakers will need to…
Read MoreApril 22, 2021
Letter to Congress: Chronic Care Policy Alliance Opposes H.R. 3
In a letter to Congress, the Chronic Care Policy Alliance (CCPA) expressed its opposition to H.R.3, the "Lower Drug Costs Now Act." Read the full letter: Dear Legislator, I am writing on behalf of Chronic Care Policy Alliance to strongly…
Read MoreApril 21, 2021
Mysterious Ailment, Mysterious Relief: Vaccines Help Some Covid Long Haulers
Will Stone Kaiser Health News April 16, 2021 An estimated 10% to 30% of people who get covid-19 suffer from lingering symptoms of the disease, or what’s known as “long covid.” Judy Dodd, who lives in New York City, is one of them.…
Read MoreApril 9, 2021
Letter to Congress: Health care policy should put patients first
In a letter to Congress, the Chronic Care Policy Alliance (CCPA) urged members to pursue policies that ensure accessible and affordable care for patients. Read the full letter: Dear Legislator, As the U.S. faces many urgent and emergent challenges, including…
Read MoreApril 6, 2021
CCPA Partner Spotlight: Juana and Estela Mata, Looms4Lupus
Introducing the CCPA Partner Spotlight Series: This series highlights the work of partners at organizations advocating for patients with chronic illness. Featured partners elevate the voices of patients with chronic illness at the local, state, or national level while working…
Read MoreMarch 22, 2021
CCPA Statement on Withdrawal of CMS Demonstration Weakening Medicare Part D Six Protected Classes
CCPA applauds the Biden Administration’s decision to withdraw a demonstration that would have undercut Medicare Part D’s six protected classes drug policy. The six protected classes ensure that drugs for certain life-threatening conditions are covered by Medicare. Now, patients with…
Read MoreMarch 17, 2021
Welcome 117th Congress – Issues Impacting the Chronic Care Community
The Chronic Care Policy Alliance welcomed the 117th Congress and shared key issues that would advance the wellbeing of those in the chronic care community. Read the full letter: Dear Legislator, On behalf of the Chronic Care Policy Alliance, I’m…
Read MoreMarch 5, 2021
New California Law Makes It Easier to Get Care for Mental Health and Substance Abuse
Bernard J. Wolfson Kaiser Health News February 26, 2021 Karen Bailey’s 20-year-old daughter has struggled with depression and anxiety for years. Since 2017, she’s been in three intensive group therapy programs and, each time, the family’s insurer cut her…
Read MoreFebruary 25, 2021
They have chronic illnesses. Then, the power went out in Texas. ‘It’s been emotionally exhausting.’
N'dea Yancey-Bragg USA Today February 18, 2020 Hannah Giffin needed oxygen. The 24-year-old who was recently diagnosed with four chronic illnesses relies on an oxygen concentrator to help her breathe, but when the power went out Tuesday in San…
Read MoreFebruary 19, 2021
How to book COVID-19 vaccine appointments at pharmacies
Andrew Weil KARE 11 February 12, 2021 WASHINGTON, D.C., USA — The push to immunize more Americans against the coronavirus…
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